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eBook details

• Title: Mothers Raising Children with Sickle Cell Disease at the Intersection of Race, Gender, And Illness Stigma (Report)
• Author : Health and Social Work
• Release Date : January 01, 2008
• Genre: Health & Fitness,Books,Health, Mind & Body,
• Pages : * pages
• Size : 234 KB

Description

Sickle cell disease (SCD) is the most prevalent genetic hematological disorder worldwide (Baskin et al., 2000), predominantly affecting populations of West African and African Caribbean descent, as well as populations of Asian, Middle Eastern, and Mediterranean origins (Ahmad & Atkin, 1996). SCD affects one in 400 to 500 African Americans and one in 60 to 200 African British. Carriers of the sickle cell anemia trait occur in approximately 20 percent of West Africans, 10 percent of African Caribbeans, 1 percent of Indians, and 0.75 percent of Cypriots (Aspinall, Dyson, & Anionwu, 2003; Baskin et al., 2000; Sickle Cell Society, 2007). SCD is a life-threatening, recessively inherited blood disorder with a wide range of potentially severe symptoms, including vaso-occlusive pain crises, anemia, organ damage, acute chest syndrome, chronic tissue damage, leg ulcers, severe fatigue (Atkin & Ahmad, 2001; Baskin et al., 2000), and psychosocial stressors (Telfair & Gardner, 2000). Treatment involves pain management, regular health care consultation to prevent life-threatening infections, and avoidance of circumstances that trigger pain crises. SCD symptoms begin during childhood, and the highest rate of mortality occurs in childhood (Martin, 2002) .Thus, illness management constitutes a significant focus and serious disruption in the lives of children and their parents (Logan, Radcliffe, & Smith-Whitley, 2002). Recent psychosocial SCD research has emphasized a family-based approach to coping with the illness (Baskin et al., 2000; Brown & Lambert, 1999; Wood, 2000) and focused on relationships between children's adjustment to SCD and parental functioning factors (Barbarin, 1999; Barbarin, Whitten, Bond, & Conner-Warren, 1999; Brown et al., 2000; Devine, Brown, Lambert, Donegan, & Eckman, 1998; Logan et al., 2002). However, there is little research that aims to understand the parental perspective or to situate the experiences of families affected by SCD in the broader context of social inequalities.

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